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For most of us, its difficult to imagine what it must be like to be on the candidate list for a major organ donation. Its bad enough having to deal with self-induced reproach that comes with a serious but routinely treatable medical problem. Why did I fall? I should have held the handrail or I should have given up smoking, and so on.
But as regards an illness that can only be treated by transplantation, there is a whole new area of guilt available, and according to medical workers, many patients avail themselves of this extra level of reproach. Ive seen descriptions in the press of the emotional schizophrenia that can arise when an ambulance siren sounds in the distance. Did someone die? Will I be saved? After all, in about half of all transplant cases, survival can only come at the expense of anothers death. Data on the United Network for Organ Sharing Web site indicates that almost 12,000 transplantations were performed in the United States in 2000, of which half came after the death of the donor.
Most of us believe in transplantation. However, one of the true gut-checks in my life was taking my then 16-year-old daughter into the Connecticut DMV for her drivers license test. The application asks the license holder if they are willing, should the occasion arise, to be an organ donor and to have their license so labeled. But 16-year-olds arent allowed to sign such a document for themselves; a parent must co-sign. Of all the times Ive ever inscribed my name, that was probably the most disconcerting. Nevertheless, I signed.
I bring this up because we are now engaged in a great debate on the moral and ethical questions surrounding stem cell research, specifically whether such research should be funded by governments using general tax revenues. Its a complicated question, but one that ultimately should be decided in the affirmative. This should be done for several reasons.
In all likelihood, this research will go on, one way or another. Scientists believe that treatments for Parkinsons disease, leukemia, and other similar illnesses will be found as we learn how to trigger stem cells to produce renewed cellular structures that will allow us to heal organs. However, if we force this work to be carried out totally within the private sector, we will either never see it done or will pay dearly for the results. Public funds grant us all public access.
In addition, we should realize that we already have programs similar to what were proposing for stem cell research. We now promoteand even solicitorgan donation, and in one sense, thats what this research effort is all about. From drivers license registration to virtually every hospital emergency room, we have programs designed to promote life from the loss of anothers life. And while I certainly do not equate the removal of organs from a cadaver with the removal of stem cells from a blastocyst, the fact is that in both cases, we allow informed consent from an adult to cover those who are not of age to answer for themselves.
However, even having said that this research should go forward, we should do so with the awareness that, hopefully, someone, somewhere, has made an informed decision that these cells and their source should be sacrificed for our better good. And if we who might benefit from that sacrifice feel a little guilt, maybe thats all right. In fact, maybe thats even good for us.
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